Wednesday, September 7, 2011

Hindsight is 20/20 and/or I'm Stupid


Dark Side Wii, I will never underestimate
your power again.
A couple weeks ago, our Wii went to the Dark Side.  It didn't die entirely; we could still stream Netflix through it.  However, it petulantly refused to play the games.

We tried cleaning the lens with some special doohickey, and that didn't work.  And then ... I kind of let it slide.  The kids are enjoying Netflix, and no one complained (much) about the lack of Lego Star Wars.

Meanwhile, we were preparing for school to start, which ramped up Little Dude's anxiety, which in turn ramped up his, um, "less-than-cooperative" behavior.  By last weekend, I was being screamed at daily.  Sometimes the screams were incoherent, but mostly they went along the lines of "I hate you! I wish I didn't live here."

I don't take it personally when he says things like that.  At the moment, it's his way of expressing frustration and anger.  We try to give him different words to use, by saying things like "I understand that you're feeling frustrated."

Yeah.

When he's screaming, it's not that effective, but presumably it'll help down the road, right?  I also say things like, "I'm sorry to hear that, but I still love you."  Sometimes I'll drawl it out all lovey-dovey, "but I love yooooo-oooooou."  I've got a 50-50 shot that that'll make him laugh enough to distract him from the screaming.  (Alternatively, it makes him scream more.)

While I don't take it personally, I really don't enjoy being screamed at.  This is probably stating the obvious, but in general it's very stressful to be nearing someone who's screaming, and especially when the person is screaming "I hate you!" at you.  It's also not that good for Little Dude's three older sisters, who are all pretty sensitive to sounds and have anxiety issues.

3M Peltor Junior Earmuffs, Pink
Pro Tip: Headphones
that protect hearing also
protect sanity when your
little brother is screaming.
For some reason, it dawned on me last weekend that the Lego games on the Wii are an integral part of Little Dude's stress-coping mechanisms.  He uses them to zone out.  He's mastered the games, they're predictable, and he knows where every little bonus canister lies.  The games help him relax and be less screamy.

Duh.

It has been suggested in the past that I use it / withhold it as reward / punishment for Little Dude, to encourage him to potty train or whatever. I always said no, because it's too much a part of who he is.

I knew this.  And yet I chalked his behavior up to school anxiety, without giving him a a way to release the stress.  Sure, we play outside, we wrestle, we snuggle, we do all those things that help relieve stress. But the one thing that he's been using for the last three years wasn't there.

Why am I so stupid?

I don't know.  Maybe it's because I'm also trying to problem-solve eleventy thousand other issues.  Maybe it's because the Wii isn't that important to me, so I didn't see it as being important at all.  Maybe it's because I am triaging crises on a minute-to-minute basis, and barely have time and energy to take a breath and re-assess the larger picture. 

Somehow this relieves stress.
Or maybe it's just that hindsight is 20/20.

We bought a pre-owned Wii at a good price, hooked it up, and let all the kids zone out for an entire afternoon.  We played Just Dance as a family, and we played a lot of Lego Star Wars and Lego Indiana Jones.  Most of the family never got out of pajamas.  And Little Dude was happy.  And he hasn't screamed at me for a whole 36 hours.

I don't mean that the Wii solved all our problems, or that it's the end-all and be-all of stress management tools.  But it is very important to Little Dude.  So I'm going to continue to let him play "too much" Wii, or what would be too much for a typically-developing, non-Little-Dude kid.  I'm going to try to think in a more balanced way about the stress of my kids; not just what we're doing to reducing stress and help them develop coping skills, but what we're doing to release stress.


30 comments:

  1. I love this. Thank you! And glad you found a 'fix'!!!!

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  2. That 20/20 hindsight thing always bites my ass, too. Bravo for you for figuring it out before he went completely psycho, and for understanding that what looks like "too much" from the outside can be just right for your family.

    My Jake LOVES to watch movie trailers on the computer. Especially old ones to films he's already seen. And he'll do it for hours if I let him. And some days? I just let him because it makes him happy.

    Hope your school start goes smoothly! (Or what passes for smoothly in our kind of families.)

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  3. Wii has the opposite effect at our house. It mostly leads to frustrated boys fighting with one another and yelling at the TV screen. So, I limit game time. But, I can relate. At night, I lie in bed playing Yard Sale: Hidden Treasures on my iPod. I have beat the game ages ago, and I know where every item is, but something about playing it helps me wind down and get ready to sleep.

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  4. Thank you so much for your post! I just spoke to my Little Dudes' ESE teacher this morning about the very same thing. From the screaming (he's 3 1/2 and his favorites are: "don't look at me" or "shut up" (which he only uses on family), & NO we don't speak to each other like that, EVER) to the older sibling with sensitivity AND anxiety issues. Like you, I don't take it personally - he might as well be screaming, "the floors are wood!" I think I'll try the sing-songy approach next time. Thank you for bringing humor to a sometimes very frustrating behavior.

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  5. You are not stupid. You are an awesome, amazing mom because you are understanding what your child needs and making sure he has it. You have already seen the proof. You did good, mom.

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  6. You're not stupid, you're human. Also, don't forget that ADD gives us the magical ability to simultaneously not see the forest for the trees and not see the trees for the forest.
    Hindsight is actually better than 20/20 because not only do you see what did happen, but what *should* have happened. (I'm not a fan of the shoulds.)
    Ah well, onward and upward as I like to say!
    ~brook

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  7. Please, just don't leave the label saying "i suck"! You don't! Even if you're not perfect - who is, anyway? Big hug and yeah for Lego Star Wars. We just have a simple computer without any consoles, and my son is on lego.com a lot (don't need a wii for that, next time yours turns to the dark side, you might try it as a way to survive the time without?). Actually he's on the computer "way too much" and he's just a NT kid who needs to zone out now and then...

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  8. Years ago I heard a counselor say: "zoning out is what normal people do to unwind." This was meant to contrast destructive addictive behavior. But I remember it because that really is what people do - have a hard day at work? Watch some bad tv. Maybe it would be 'better' to play raquetball or something, but whatever.

    It's not fair to expect more of kids than we expect of adults! Which is to say: rock on with the Wii!

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  9. funny how it can take us a while to figure stuff like this out. :) So glad you did. The Wii is also a source of stress busting for us and our kids...but to a point. We've had to tell the youngest (6 now but was 4 when we got the Wii) that if turning the Wii off makes him cry like an animal being skinned, then we can't play it anymore. He doesn't do it so much now...but being a stepfamily (youngest 2 are his, oldest is mine) it took us a little while to figure out that the day Zip has to go back to his mom he's a moody, angry and sometimes violent kid...and letting him play the Wii a few hours before Momtime calms him down to a point where he doesn't battle us *as much* when it's time to drop him off. So we don't withhold Wii time those days. It's easier on everyone involved.

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  10. We let Sky do this but with a DS and headphones. That way our stress doesn't become elevated from the sound of way too many laser guns being fired...

    Do you have trouble with the post-video game transition back to reality? Even with ample warning, etc. sometimes we fail to make this transition without a scream-laced meltdown...

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  11. It's amazing how often the simple answer is the right one, but still we miss it. I do this all the time. Why is he freaking out? Shoes hurting? Misses his old teacher? Processing from school? Oh. It's dinner time. Oops.

    Glad you figured this one out.

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  12. To Mom on the Edge - I have a 7 year old daughter that LOVES her Pixie Hollow online and her DS and the best way I have found to transition is to set a timer. That way, she sees the time she has left and knows that if she stops when the timer goes off, she will be able to go back and play more later. If she doesn't stop?? She doesn't play until the next day. It has taken us a while to get to this point, but it works now!!! Good luck!

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  13. We all have times like that, especially when it comes to our NNT little bits. Most of the time it is like a giant kick to the head and I am all "DUH...why didn't I think of this earlier????"

    Keep on trucking SRMM!!! You are doing great.

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  14. LOVE this post! My own 'little Dude' has a serious need to surf the wed. He visits pages for Sesame Street and Cedarmont Kids, and watches kid videos on YouTube. And he plays games on the PBS site. The same ones, over & over. He needs it. Both sets of granparents have expressed concern over how much time he spends on the computer. A lot. But he's happy there. He picks up new language and social skills (really!) from repeatedly watching the kids online. He's learned to wait his turn by playing simple gmaes online-something I've been trying to teach him FOREVER @ the kitchen table-memory-match, he didn't have the patience for. But online? Heck-yeah. So, now he can play it in the real world, too. My guy needs his computer. Glad to hear I'm not the only one!

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  15. Hindsight - lets you see what has already kicked your behind. Don't be too hard on yourself - it happens to all of us. And my son uses the computer and video games as calming mechanisms too. "Too much" is relative - relative to his needs, and relative to my sanity. It's always a balancing act. Some days he needs more zoning time than others. So do I. (There's a reason I play Bejeweled Blitz on FB!)

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  16. you gotta use what works for you and your family and to heck with any Judgy McJudgersons. my boy like his They Might Be Giants on the Ipod. it's the 'constant' when we travel to unfamiliar places.
    p.s. i gotta have more family pajama days.

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  17. Well honey, if you're stupid, I am downright brain dead. (Remember me? Our kids are twins separated at birth from different mothers about nine years apart.)

    My kid must, MUST, still at the age of 14, get a certain amount of Whatever-That-Game-Is - and yes, it's a STAR WARS GAME - in order to cope and process. I think it's like knitting or scrapbooking or doing shots right out of the bottle for the rest of us inferior NT types.

    So no, babe, you aren't stupid......every time something like this happens, jump up and down for joy for you have just found a new "canister" in the video game that is navigating your Aspies' brain. Save that morsel and revel in the fact that you were able to figure it out at ALL! Do you know how many moms never find a magic key - EVER?

    And the BEEE-A-YOOOOTIFUL thing about Aspies is that once you give them the fix, they are gooood. It's not to say they can't hold a grudge, 'cause oh man they can! - but once they get that fix, all is well with the world. It's like an Etch-A-Sketch......sorta....without the dials......and the screen....well, you know what I mean.

    You ROCK AS A MOM!

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  18. Good for you for putting the pieces together. It's difficult to troubleshoot behavior stuff, even when you feel all "duh" after the fact.

    Continue to tune out the people who suggest you withhold the video games as punishment. If your AS son is anything like mine, this type of "incentive" will only increase anxiety. What works better is to "catch him being good" and give him, out of the blue, extra Lego Star Wars time when he has done something super, like use the potty. You catch more flies with honey and all that. The opportunity to gain a desired item is much more motivating than the threat of losing it, autism or no autism.

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  19. Hindsight is 20/20. It happens to everyone - that sucks that it had such and impact. Glad little dude is doing better with his Wii. And you know what, gaming with your kids is awesome. I still have great memories of my Dad playing Duck Hunt with me and my brother when we were kids.

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  20. Awesome job figuring it out. I have a kid with no NT junk and I still sometimes miss what causes the problems. WHat does that say about me if you are stupid? I must be the one drooling on myself!

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  21. When my son (also an Aspie) was small, he used those exact same strategies when yelling. "I hate you!" "I wish you would die!" or "I will shoot/cut/stab you!" when he didn't have words to explain the feelings. Dragging him out of WalMart while he was saying those things, under the judgmental stares of other adults was never fun... I know you probably hear it a lot, but when you give them the right language, it really does help out later down the road. My son is now about to be 13 and I KNOW it helps when you constantly repeat to them the word for what they are feeling. I also know you probably get TONS of advice on things you could use to help him, but I have been completely and utterly amazed at two things that have worked miracles: music and the weighted vest. We bought a vest and the first thing he said to us when he put it on was "This feels GOOD!" The music is just as miraculous. He can be kicking up a good tantrum (and at 13, the tantrums can be good) but the minute I shove the noise-cancelling headphones on him, attached to the video game music he likes to download and listen to, it's instant stop; he starts to rock and that's the end. By the way...tantrums are now few and far between, not like when he was around ages 3 to 7-ish.

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  22. I think it's awesome that he's mastered all the games! My 7yo loves watching the wii, but he refuses to try and actually control it due to fine motor skills issues and some tactile stuff and an acutely developed sense of frustration. So SUPER DUPER job to Little Dude for having such amazing fine motor skills!!! It's a good thing! :)

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  23. Sometimes inspiration hits us like a lightning bolt, and sometimes it sneaks up on us. Better late than never. So glad you figured out what had changed for Little Dude and that he is coping better in the pre-school time period. Congrats, SRMM!
    ~physicsmom

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  24. Our wii broke this summer, it took us three days to buy a new one. And this was for our NT child. I totally get it.

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  25. I totally feel your pain. My 8 year old is totally obsessive with his iPod (his mommy and daddy's phones will work in a pinch...LOL!). It's totally his stress reliever. I let him play way too much Angry Birds. But ya know what? Life is a HECK of a lot more peaceful when he gets his hour in the morning and hour after school of Angry Birds time!

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  26. I love your post! And I think this is a great mommy moment, you realized what your child needed and MET HIS NEEDS! I have 2 children and can't do this most days. Good job mama!

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  27. My son was born with Grade IV brain bleed and hydrocephalus three years ago. His symptoms parallel some behaviours on the autism spectrum and its so hard to explain his behaviours and needs to my friends who all have NT children and (seemingly, especially when I feel overwhelmed with all of this) perfect lives.

    I just wanted to say thank you so much for having a blog like this and putting yourself out there as a mom. I stumbled across your blog when I was up late one night after a long stressful day and I just sat there and cried... because I felt like I finally realized there are other moms dealing with things that I also deal with.

    I got kind of off topic, but I just want to let you know that you inspire me to trust my parenting, even as my "friends" seem to judge me for letting my son unwind with "too much" television, or watching him scream and collapse in a tantrum in public. Thank you from the bottom of my heart, you are a wonderful mother and person.

    Tara E

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  28. ARGH! I feel your pain. We have gone through 2 pre-owned Wiis for this very same reason. My son plays Lego games, but also loves to play Guitar Hero to wind down and we've found it helps with his concentration abilities.

    I haven't seen a whole lot on the topic of Anxiety in the younger children of families with AS or other disorders such as BiPolar. We have the same problem. Our younger son has horrible Anxiety since our older son has screaming fits that would drive anyone bonkers.

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  29. It's funny how something so simple could have such an effect on Little Dude. People are creatures of comfort and I bet that if something important was missing from our own day we too would have problems adjusting. A morning without coffee makes my entire day terrible!

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  30. Yay for you. When other parents on the playground talk about how they try to limit their children's screen time, how can I possibly confess that I have actually yelled at my sweet aspie child "Go turn on Wesnoth RIGHT NOW!" (Wesnoth being her war/computer game of choice right now. She does love her some Lego Star Wars, too.)

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