Tuesday, August 30, 2011

Helping Your Child Be Friends with a Child with Special Needs


I freaking love Glee.
Yeterday's post was in answer to an e-mail I received, asking how to be a good friend to the parent of a special needs child.  Here's the rest of yesterday's letter.
Am I wrong to assume that our kids (we both have preschoolers as well as one younger kid each) can remain as playmates, autism be damned? I have learned that group playdates don’t go over very well, but when it’s just her kids and mine, it’s a general success (as successful as can be with a handful of kids under four in one tiny house—special needs or not). I repeatedly explain to my preschooler, who is very affectionate, that our friend doesn’t always like to be hugged and needs a few minutes to adjust upon entering our house. You know instead of the “you’rehereyou’rehereyou’rehere let’splaywitheverythingrightnow!” greeting preschoolers prefer to give most guests.


But, what else can I do to help my child be a better friend to the playmate? When the playmate melts down, my kid looks at me with great concern. I’m totally at a loss on how to help my kid be sensitive to our friend’s special needs, and how to be a bit more sensitive myself. So I beg of you, your readers, whomever—what more can I do?
Many thanks,

M.
I know.  Now you want to be friends with her even more.  Because of the awesomeness.

This is a situation I struggle with personally.  Little Dude desperately wants to have friends, but is sometimes at a loss as to how to make friends and interact with his peers in a way that works out for everyone.  And the Pork Lo Maniac's ADHD has its own social impacts.

To those who would say that you've taught your child to be kind to everyone, here's a reality check: It's easier to be kind to some people than others.  Some friends take a little more work to understand.  By first grade, kids are very much aware of differences and the desire to fit in.  As kids get older and peer pressure becomes more of an issue, they may be afraid that hanging out with certain kids will cause a drop in social status. 

It's hard growing up on the "outside."  Despite the work our schools are doing to combat bullying, there is still the insidious tendency for some kids to be simply excluded.  Unfortunately, bullying and exclusion have very real effects on all our children and on society as a whole, so it's worth taking the time to give this some thought.

How to Help Your Child to Be a Good Friend to a Person with Special Needs

Put things in a context your child understands. My friend Sandra is the master of this. Her twin girls are terrific friends to Little Dude. The know that he's different, but they don't seem to care. Sandra will explain things to them in a context they can relate to. For example, "you know how you're freaked out by the Big Red Chicken on Dora? Little Dude is freaked out by loud noises." Little kids all have stuff they're afraid of or that freaks them out. They totally get it. They actually get it better than most adults.

Sometimes kids can be jealous of the attention
a special needs child receives. 
Or of their cool Hello Kitty wheelchair.
("But Mo-oooommmm!  I want one too! 
Yes, I know my legs work fine.  So?")
Realize that your kids probably don't think my special needs child is all that special. Since most little kids have meltdowns once in a while, like to put underwear on their heads, and can't always brush their hair / wipe properly / zip their jackets / eat like a civilized person, they probably haven't noticed how jacked up my special needs kid might be. Seriously, even if the special needs child is obviously different, like in a wheelchair with a G-tube poking out from under their t-shirt, your child might not be that impressed. Because he's ogling the Star Wars backpack the feeding pump is kept in.

Encourage them to ask questions and answer them to the best of your ability. Once your child notices that the Star Wars backpack is attached to a tube leading to a second belly button in her friend, she may want to know about it. If you sense that she's uncomfortable asking, but you can tell that she's curious (because, you know, she's staring), it's okay to say, "that's Susie's feeding tube. It's how she eats some of her food." Or "Little Dude sometimes can't hear you because he's so excited about his Legos." If you don't know the answer, please ask us! I think I can speak for every special needs parent that we are happy to help you raise an understanding, kind child.

Praise your child for being a good friend. When you notice that your child lowered her voice, or chose the allergen-free snack, or ignored the obvious odor coming from a Pull-Up, tell him that he's a good friend.  Tell him that he's kind, he's thoughtful, and that he's the kind of person you're proud to know.

If your kids are school-aged and older, keep teaching and modeling empathy. Just because your kid outgrew Barney doesn't mean she doesn't need to keep hearing that kindness is a priority. In fact, as kids get older and peer pressure becomes more of an issue, it's even more important that you reinforce what your family values are.  And yeah, when you rolled your eyes or acted impatient with the cheerful but methodically slow bagger at the grocery store, your kids saw you.  And learned from that.
Professor X rocks the wheelchair.
Happens to also be a mutant. Still a hottie.

Help your kids learn why their friend does what they do. Your younger kids can watch shows like Sesame Street and Arthur, which regularly feature all different kinds of kids. There was an amazing episode of Arthur called When Carl Met George that gives kids and adults alike a terrific understanding of Asperger Syndrome.

With your older kids, watch movies like Adam, Mozart and the Whale, or even X-Men (hello, Professor X). There's also tons of television shows (good ones, not creepy after-school specials) that feature differently-abled characters: Parenthood, Glee, The Big Bang Theory, and Secret Life of an American Teenager come to mind.

Help them find fiction and nonfiction about their friend's special needs. Read a novel like Mockingbird by Kathryn Erskine with your tweens, and talk about the book with them.  In nonfiction, How to Talk to an Autistic Kid, by autistic teen Daniel Stefanski, gives specific examples and concrete tips.

What else, y'all?  Obviously my answers are skewed toward understanding kids with autism, but this applies to all kinds of special needs situations, as well as kids with serious food allergies or kids going through tough times.  Leave your suggestions in the comments.  Thanks!

32 comments:

  1. "A is for Autism, F is for friend." This is a book but there is a YouTube video that has some narrated excerpts from this book. When my daughter was in Girl Scouts in kindergarten and first grade I sent an email and link to all of the moms in the troop. I asked them to please watch this with their daughters (because the book really is geared for 11 year olds) and to please discuss the video with their child so that they may understand my daughter better. I think it helped. My daughter often got incredulous wide-eyed looks from her fellow scouts and I think this video helped diminish that.
    Also, a great non fiction with a Autistic teenager as the main character is, "The Curious Incident of the Dog in the Night."
    And don't forget the movie, "Temple Grandin."

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  2. Thank you! I have trouble as an adult processing my feelings fast enough to interpret and help my child understand others (partly b/c of his own issues that we are just starting to seek a diagnosis for). He was a tuber - so some of your observations CRACKED me up. Because of our rough start with him, I tell myself I am more sensitive to the needs of others, but all our situations and needs are a bit different. I have found myself sticking my foot in my mouth with some of my dearest friends whose children won't "outgrow" the feeding woes like mine did, so reminders to model good behavior are duly noted and appreciated. But, thank you for specifics, too. I think I need to hit the bookstore for some of these suggested reads.

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  3. Once the coffee kicks in I might have some insight - helping AspieBoy to learn how to be a friend and helping potential friends understand why there's no oxygen in the room for THEM I have a little experience.

    But until my Encephelocaffeineation takes place I just want to say that I FREAKING LOVE YOU for writing this piece! Someday, chickie, I am taking you out for many cocktails and some hideously fattening food!

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  4. I'm really not sure what other tips to include. I just wanted to say thank you so much for this post!! My daughter would be the one in the most awesome wheelchair with the light up wheels! Lol I've noticed that most kids love and accept her for who she is as a child. The problem? As much as everyone knows and loves Madison, she never get invitations to parties or play dates or sleep overs like the other girls do. It's the parents that aren't quite sure if they can handle having her there. I think sometimes it's not the kids at all that need to be reminded to be friendly, it's the parents. Children are amazingly accepting and loving!

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  5. For younger kids (preschool to second or third grade) I like The Autism Acceptance Book by Ellen Sabin. It's a workbook style approach that talks about how to be friends with someone with autism. I like that it focuses on finding commonalities.

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  6. My oldest is one of those kids that is excluded. It's super hard when a sibling gets an invitation to a birthday party - he asks "Why doesn't anyone ever invite me?" He's 12 now, and it's hard for him to even recognize who *is* a friend. He needs someone else to tell him. 12 year boys don't do that, so he thinks he has NONE. In his mind, that gets confirmed when they don't invite him over.

    Sorry, little rant there. These teenage years are going to be HARD!

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  7. I totally agree with jmontour that I think alot of times it is more the parents that cannot handle the special needs child more than the other children. I hope many parents read this blog post and take it to heart. Great post!

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  8. This is great. I'd have to say...another tip I'd add if we're talking about being a good friend is to teach your children to speak up when they hear other kids who aren't being so nice. Be the voice in the room that says, "Hey! That's not right!" Have them point out all the things that are awesome about their friend. Bullying, especially in middle school years, is horrible. A good friend will stick up for their special need friends, even when all the other kids in the room are being jerks.

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  9. Love this post! I'm a special needs mom of a child with a very rare craniofacial syndrome - one that, in his case, doesn't affect him mentally, rather his differences are physical (and quite obvious). My kids started preschool this year and I've made it my goal to become really in the school while they're young. While many of the "special needs" books out there for kids are focused on autism or behavior issues, I couldn't find anything that addressed our situation - so I made one myself. (You can check it out on my blog). I'm going to be reading this to the boys' classrooms to help them understand why Aiden is different and what he has been through. I'm hoping that establishing this from the start with his peers might answer some of their questions and help them to see that at the heart of it all, he is a child just like them.

    Because we often get stares while out in public, I decided I wanted to encourage people to talk and ask questions - so that I can take the opportunity to raise awareness. I made business cards with the following message:

    "Hi! We are the Skees Family - Taryn, Rick, Ethan and Aiden. Our youngest son was born with a rare craniofacial condition and we hope to
    raise awareness within the community.
    We understand that you or your children may be curious or have questions -- and that is okay!
    We welcome the conversation :) Or, check out our blog to read more about our special little guy (www.moreskeesplease.com/aboutaiden) and our family.

    I've used this a couple of times and it really seems to "break the ice" with adults - and is a no pressure way to allow a conversation to flow naturally or, if they'd prefer (and are still too nervous to know if they are "saying the right thing", it gives them the option of checking it out on their own time.

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  10. The last two blog posts have been GREAT! I have a wonderful friend who's 2 year old was recently diagnosed with Autism and everything the letter writer wrote has been on my heart lately. My 2 year old plays wonderfully with our friends daughter, but my 3 year old gets scared when she screams or has a tantrum. My 3 y/o often tells me she doesn't want to plan with our friends daughter. I try to teach her patience and understanding, explaining that her friend gets frustrated like she does and has a hard time talking about it like my 3 year old can, which results into the screaming.

    I hope I can not just implement your suggestions, and those of your readers, to help me teach my children to be better friends, but so that I can be a better friend too. Thanks!

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  11. I'm right there with Kristine. My Aspie just turned 12. He sees his NT sisters get all sorts of invitations, but the invitations rarely come for him. Lately, he claims that he doesn't need friends, but I think that's a defensive measure because he doesn't believe he has friends. I would love for someone to invite him to a birthday party or just to hang out, and I think he would love it too.

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  12. Two of my three children have type 1 (insulin-dependent, auto-immune) diabetes. They are 6 and 3 years old and wear insulin pumps. Because they are so young, we often get a lot of stares, horrified looks, and various other negativity from adults when we have to check blood sugars and/or administer insulin in public places.

    Because we've been dealing with this for 5 years now (our 6 year old was diagnosed at 18 months old, the 3 year old at 26 months old), most days we chug along pretty well.

    But when my 6 year old and 3 year old are both having low blood sugars in the middle of Target, they're pale as ghosts, I'm poking a finger on the 6 year old, a toe on the 3 year old and my 8 year old daughter is helping me shove candy in their mouths to get their blood sugars up to non-coma-inducing levels, I'm most grateful for the friends who act like it's perfectly normal to picnic in the middle of Target.

    The kids who are happy to wait to eat when my kids need to wait and are extra excited when they get to have extra candy because my kids' blood sugars are low - those are keepers. If you can deal with the fact that our lives have 15 minute intermissions throughout the day for checking & treating blood sugars, and that we have to be a lot more vigilant about germs because my kids get EVERY single bug that goes around due to compromised immune systems, I'll love you forever.

    And for what it is worth, we've found that kids are extremely accepting of our boys' diabetes and what it takes to care for them. It is the adults who say the horrifying and stupid things ALL the time.

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  13. Very timely! If I hear another parent talk about how super sweet and shy their kid is and how they worry they'll get picked on, while said kid repeatedly and deliberately touches my son and watches him get upset every time until he explodes....UGH. There needs to be special instructions sometimes.

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  14. SRMM, since you brought up "Parenthood," I've been wanting to ask you whether this show provides an accurate representation of the life of a child with Aspbergers and the family dynamic surrounding it. Somehow I get the notion that it's a little simplistic, but I don't really know. Would you be willing to write a post about it, explaining what they get right and what might be done better? Since it's pretty high profile, it's spreading the autism message organically, but I want to be sure it's right. Thanks so much.
    ~physicsmom

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  15. Start here:
    http://momnos.blogspot.com/2010/03/on-being-hair-dryer-kid-in-toaster.html

    ...and read all of the posts related to it. A phenomenal jumping off point for kids and adults alike

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  16. Not sure why the link didn't work above, but Google"A Hair Dryer Kid in a Toaster Brain World" for other related links that will bring you to the Blog

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  17. For teens, the blog/cartoons by Matt @ Dude, I'm an Aspie (www.dudeimanaspie.com) might help them understand better how to relate to their special needs friends.

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  18. I love you! Not in a scary stalkerish way but in the way only one mum of a SN child can to another.

    Thank you for putting into words what I cannot. Again.

    Madmother
    who for some strange blogger reason cannot log in at all to comment.

    Can if a pop-up box. Just sayin'.

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  19. I love this blog, and super-special love the last two posts! And also all the wise commenters who remind me that there are lots and LOTS of ways to be special in our world - and therefore lots of ways to learn to be understanding and supportive. Thank you all! <3

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  20. I really think putting it in terms the kid can understand is the best one. Even my Aspie doesn't get his brother who's on the opposite end of the spectrum. I'm constantly saying "You know how you don't like ______? Well, your brother doesn't like _______ in the same kind of way."

    And this cheerful but slow and methodical bagger at the store? Where can I find them? I just lost a couple of cold items because they weren't in my insulated bag for cold stuffs, but rather were in with some spices in a regular bag because my bagger was in a hurry and just threw things all willy nilly into bags last time I shopped. I totally appreciate slow and methodical when it comes to my groceries.

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  21. It's difficult to understand sometimes that we as adults have learned lessons that young children have not yet learned, but please urge the kids to imagine what it must be like for nobody to want to be friends with them due to a difference in their life. How lonely that must feel. My 18 yr old stepson battles autism, and his 16 yr old NT sister has her head so far stuck up her rear that I want to throttle her. I mean, God forbid she be seen with her brother in public that she won't be bothered to give him a ride home??!!! Lots of patience involved on my part, but the bright side is that there is hopefully lots of time left on this earth for her to learn from her mistakes and do some self improvement. I don't have cable right now (and life is wonderful without it) so I can't speak too intelligently about this, but perhaps if the networks started featuring NNT kids or other kids with challenges that mainstream kids don't face, that might help. I remember one show in the 80s called Life Goes On - one of the kids in the family had Down's Syndrome. We need more of those shows in different scenarios - I mean, this show was pretty benign, I don't remember a lot of bullying going on, nor a lot of other kids taking up for the character or befriending him. However, in my defense, that show was many years and MANY bloody marys ago!

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  22. As the mom who wrote to SRMM, I want to thank each of you for your comments on the last two posts. I truly appreciate your suggestions, experience and wisdom as my children and I seek to strengthen our friendship with this very wonderful family.

    And thanks, SRMM. You are the bomb diggity.

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  23. Sometimes the kids know more than we do about how to behave around a special needs friend. I *just* wrote a post about how one of my son's friends at school totally blew me away on the first day: http://ihavethings.blogspot.com/2011/08/same-old-n.html She just ACCEPTS him. It's almost hard to express how much of a gift that is.

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  24. Well, I was totally gonna stalk you to be my friend when I read your post about Texas on Rants from Mommyland, but thought that might be a little weird, so I restrained myself. Plus, I read that you moved back to Philadelphia and it would be hard to stalk you from DFW.

    Now I can't resist commenting. I absolutely love the past two posts. I am an SLP who is passionate about children with special needs and worked for years at a summer camp that integrates children with mild-moderate special needs into a typical camp environment. I find that being honest with kids about what they can so plainly see--that another child has differences--goes a LONG way toward developing empathy. I find this to be true especially with children without visible outward differences--it's difficult for kids to comprehend that 'weird' (how many Aspy kids are described) is really a disorder because the kids look the same as them. It's much easier when they see a brace, wheelchair, etc.

    Why is this all taboo? I don't think adults mean to be insensitive (I wear my rose-colored glasses often), but they are going by how they were taught. I'm almost 35 and I never went to school with children with significant special needs, and they were certainly never integrated into any classes/activities. People who have come of age since 1994, when IDEA was passed, tend to be a bit more understanding. Let's just get it all out in the open so we can talk about all of this already!

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  25. The Nature Walk episode of Franklin is another great TV to watch to discuss special needs with the early-elementary crowd, and Signing Time shows kids of a variety of abilities and disabilities. Keeping disabilitity in the realm of normalcy does help- "treat others as you would want to be treated" is a mantra that can be easily discussed. "If you were feeling overwhelmed, would you want someone to make that face at you? No? Let's talk about better choices to support our friends, as we would want them to support us..."

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  26. Rules, by Cynthia Lord is another good "chapter" book for older kids. I love your site, and boy did I need it today!

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  27. I second the recommendation for Rules, which I loved. It was one of the summer reading picks for my daugher's 6th grade.

    Two more wonderful books for that same age group (9-12) are Al Capone Does My Shirts and Al Capone Shines My Shoes, by Gennifer Cholodenko. I would never have looked at these books had they not been recommended by a middle school librarian friend, because the titles didn't appeal (I expected gangster lit). They are told from the point of view of a 7th grade boy with an older autistic sister living on Alcatraz Island in the mid 1930s. Check out the Amazon reviews.

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  28. You know, I have avoided having birthday parties for my ASD son that were anything other than just cake at home with the family. I think this year (when he turns 5) we're going to do something cool. And invite all the kids from his preschool where all the kids have some sort of special needs (there's only like 5 kids in his class). I realize now that by avoiding having parties bc I was afraid people wouldn't come I have deprived other kids of an invitation to a party where they would be welcome & accepted.

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  29. ok... get your sling shots ready. but i'm going to be very honest here. As mom of a wonderful Aspie boy and his marvelous "typically developing" sister, (my blog http://sweetsweetanimal.blogspot.com) i am also sister of a profoundly Autistic woman 13 years older than me, and we grew up long before the support, understanding, and resources that exist today; it wasn't fun. and my mother insisted i befriend the unfortunately alienated disabled girl in our neighborhood. these two people dominated my life. for years i had no other friends. i feel it's important to point out that children are entitled to autonomy in their friendships, especially siblings of children with disability.

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  30. For those who are non-verbal or autistic like my youngest let friends know that they should let my child set the tone or pace. If he has a few minutes or gets to start out the festivities he is less likely to meltdown.

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  31. One other thing, I totally agree with the comments that it is the adult in the equation (at least with younger kids) that causes the worst problems. But my brother, who will remain anonymous, refuses to listen or learn about autism and what he will accept from his two year old stepson, who is less well behaved than my autistic son, he will not accept from my son who is eight because as he says your kid is eight and should know better. I don't need to know that my son should know better, I know he should know better, but he doesn't because he doesn't always understand these concepts. He curses because he doesn't know that it is wrong. Probably our fault, because we always praised his words before he started cursing and because we don't always recognize the curse words, what speech he has is very garbled because he is nonverbal.

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  32. Another MUST-READ book for everyone is "Rules" by Cynthia Lord, written from the point-of-view of a girl whose brother has autism. Excellently written Newbury award winner from about 5(?) years ago.

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