Friday, April 29, 2011

Outside the Box

We've been having a preschool problem.  In Texas, Little Dude was attending full-day preschool at our local public elementary school.  He had half-day PPCD (preschool program for children with disabilities) and half-day mainstream pre-K.  He had an IEP and it was a public school.

Here in Pennsylvania, our preschool options have been more limited (although it seems that our grade school options have been increased).  Little Dude isn't profoundly affected enough to qualify for state- or county-sponsored preschool.  He isn't potty-trained, so most private preschools can't touch us with a ten-foot pole.  And the private schools that are set up for autistic kids are out of our price range. 

Our early intervention team helped us find one private preschool that would take him, but we ultimately decided it really didn't make sense to put Little Dude in a preschool that isn't explictly trained to work with kids with autism.  It seems unreasonable to expect a regular preschool teacher to handle Little Dude and all his flailing, freak-out meltdowns unique needs.  Cookie and the Pork Lo Maniac went to a great preschool; the teachers were terrific and the class sizes small. But probably not small enough to deal with Little Dude.

So our plan was to keep trying story time at the library to give him some semblance of structured environments, and work with him on his self-help skills at home and in Speech and OT through Early Intervention. 

The skill I picked to work on is putting on his own jacket.  That seems like something that would be handy to know in Kindergarten.  The thing is, when you start explaining how to put on a jacket, it starts to seem wicked complicated.  The lay-it-down-and-flip-it-over-the-head thing is not working.  He ends up with a jacket stuck on his head and freaks out.  I'm already failing in my home-school preschool plan.

The other day, I dropped off my friend Sandra's little girls at their preschool.  It's where the Peanut Butter Kid went; it's a preschool in a high school.  It's part of an early education class for high school students that are interested in becoming teachers; they work one-on-one with the preschoolers.  Because the costs are offset by the high school, it is extremely affordable.  The Peanut Butter Kid loooooved it, and when Little Dude was a baby we thought we'd send him there eventually, too.

Obviously, it's a preschool for typically-developing children.  It is so completely not set up for special needs; toilet independence is understandably an absolute requirement.

While I was dropping off Sandra's girls, I decided to pick the brain of the teacher (the grown-up, not a high schooler) on how to teach Little Dude how to put on a jacket. 

She had no idea.  She only gets kids who already know how to do that kind of stuff.  But she was interested.  She offered to talk to the autism support teacher at the high school and make me laminated visual-cue posters.

Embarassed, I assured her I wasn't looking for her to solve our problem; I just thought she might know a simple trick to teaching kids how to put on a jacket.  We chatted some more about our situation, and then she made the most amazing offer.

She is letting Little Dude attend the preschool, with me in attendence as well.  Basically, I get all the resources of the preschool, and Little Dude gets focused, structured one-on-one time with me.  He'll also get to work with one of the high schoolers.  In exchange, I'll be coming in (without Little Dude) during some of the high schoolers' classtime to teach them about autism, special education, and special needs.

I am overjoyed.  The teacher?  Is gold.  She wants to learn more about autism.  I brought in some books about autism and sensory processing disorder (thank you, Hartley Steiner) and she was all kinds of excited to read them.  I will obviously now do anything for this woman.

And seriously?  The opportunity to teach budding teachers about autism is a-may-zing.  I can tell them that my wish is that teachers help kids in the areas where they need help, but also focus on what's awesome about them.  I can tell them how grateful we are to the first special education teacher Little Dude had; she set the tone for him to like school.  I can tell them that every single person with autism is unique, and that they are not all goddamned Rain Man.

The preschool itself is an opportunity to help him develop more tolerance to noise and commotion.  (It's a huge room, with 20 preschoolers and 20 high schoolers.)  It will give him a semi-structured something that is not in our house.  He'll get to work with a teenager.  It will also give his early intervention team a place to observe him "interacting with peers."  (Side note:  Bahahahahahahaha!  "Interacting with peers."  Riiiiight.)

I am so grateful.  Grateful for this outside-the-box solution that just fell into my lap.  Grateful that I am a stay-at-home mom, my other kids are in school, and I'm able to do this with him.  Grateful that a teacher wants to learn about autism and is willing to open her door to our family.

34 comments:

  1. AWESOME!!!!!! How wonderful for little dude that this situation appeared. That teacher sounds like she is truly golden. I am so happy for you. This is just fabulous in so many dimensions I can't even begin to articulate. Congrats!

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  2. Really, really COOL! What a great opportunity for all.

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  3. Wow! A stellar mom/teacher combination. Little Dude can't lose. Would you consider naming the books you recommended? Thanks. And, again, congratulations.
    ~physicsmom

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  4. That's cool. I'm in PA and they have public preschool for autistic children through early intervention in our school district. Was that not an option where you are? Or did Little Dude not qualify? It sounds like you found an even better solution, I'm just wondering if they offer the same services in your district as mine.

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  5. Sweet! My (neuro-typical) son does pre-K through our SEPA school district's area technical school as well, and he loves it. It IS really affordable, and I think they learn quite a lot when being paired one on one with high school students, as well as with group activity. That's a really fantastic solution your very awesome Tech school teacher came up with. What a nice way to bring Autism Awareness month to a close. -Bernie

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  6. This made my eyes leak. I am so thrilled that such a wonderful opportunity presented itself...all over Little Dude needing to put on a jacket. You are a WIN! Keep rocking it SRMM!!!

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  7. That's wonderful! When I got to the part about the school options not being small enough to handle him, I was going to suggest a personal teacher's assistant. That's what I requested (and got) a few months into his preschool experience this year. She is just there to deal with him being...unruly, bring him back into the classroom, etc.

    What a great opportunity for you and Little Dude!

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  8. That is awesome! I'm in PA too. My younger son goes to preschool through the Intermediate Unit (ie. school district funded). However, they've tried to tell me after 8 sessions of 2 hrs and 45min that we should mainstream him in August (totally due to funding). We also have the he's not potty trained issue, and they won't be able to deal with him in a mainstream classroom. I'm not stupid. It's so frustrating. Especially when our BCBA and his neurologist agree with me that they're smoking crack. AND< out Kindergarten is ALL day. I can't find a 5 day a week program for him. How do they expect these kids to transition? I'm baffled and seriously considering cyber school for Kindergarten, maybe longer for him. He's a little more affected than my Aspie who does better in the public school system.

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  9. That is freakin awesome! I wish I could find some sort of pot of gold at the end of a rainbow. Right now I'm just wishing for a week without our X-man slugging another kid for no real apparent reason. *sigh* Thanks for keeping my hopes alive with your posts. I really understand why families of autistic children have such a high divorce rate this past couple of months.

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  10. That's awesome! I hope it works out well for Little Dude.

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  11. I think you have stumbled on an amazing opportunity for you, Little Dude, the teacher, the HS kids and the other students in the preschool class. Everyone wins. As a teacher, I would love the opportunity to learn more about autism - and not in a Professional Development Day (ie sitting in meetings listening to a presenter) - but more in a 'hands on situation'. I am thrilled for all of you, and can't wait to hear how it turns out!

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  12. I'm a preschool teacher who is totally baffled by the on the floor flip over the head way of putting on a jacket. Plus if you have 20 preschoolers trying to do that in one room? Someone's going to get a zipper to the eye. What I do is have them or help them put their hood on their head first, then they have two free hands to help them find the arm holes and the jacket is already right side up/not inside out.

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  13. What a totally wonderful thing to happen for you and Little Dude! Run with it, and I hope it turns out to be a great experience. It's especially awesome that you'll get to introduce so many people to the real face/real life of autism. I hope Little Dude grows to love his preschool.

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  14. That is AWESOME! Start educating the masses girl! So happy to hear that things are literally falling into place for you guys. I just discussed with my son's preschool that he was recently diagnosed with autism and they love him so much that they still want him to attend! (I love his preschool so much) So next year, he will be going to that preschool for a few mornings a week and PPCD in the afternoon.

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  15. Wow! What a great opportunity for you and Little Dude. Finding that teacher that is willing to take the time and work with you is a wonderful blessing. I think it's great that you are educating the teenagers on Autism. They will need those skills and that understanding when they go into teaching.

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  16. Now THAT is what I call autism awareness! What an awesome turn of events for your family and what a wonderful, beautiful teacher!

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  17. This is fantastic! What an awesome solution all the way 'round!

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  18. I am so happy for all of you with this solution. I'm literally welling up at how awesome this is. (It could be all the jelly beans getting to me though.) I do have one question though: How do you teach a 4 year old to put on his own coat? My son has never understood the upside thing and while he can get his coat on, the amount of dancing and space he takes to do it may cause injury to others when he heads off to kindergarten in the fall (maybe).

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  19. Wow, how wonderful! Who knew not being able to put on a coat would end up being a blessing!?! It's amazing the things those of us with neuro-typical children take for granted. Your blog promotes autism awareness all the time, not just during its special month. Thank you for helping us all be better people and parents.

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  20. This truly brought tears to my eyes. What an amazing woman that teacher is. The world would be better place if more teachers were open to those kind of solutions. I remember I tried to put my son in a typical after school program. I explained to the head of the program - an older woman who had been teaching for more than 25 years - that my son had autism and he would attend with a therapist. But on his first day, the therapist couldn't come. When I went to pick him up on his first day - the woman said that my son was "bothering" the other kids and "all over the place". When I reminded her that my son had autism she said, "I know but I thought he would just sit in a corner." Needless to say it was his first and last day. I know you don't need me to tell you how truly blessed you and your family are. Best of luck!!

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  21. I stumbled on your blog through another blog (rantsfrommommyland) and I have sent your link to my sister. Her son has Asperger's and sensory issues (throwing up if the neck on his shirt is too tight, not being able to handle crying babies and loud noises, etc.) My nephew is struggling in school right now with being made fun of, teacher's not willing to help him, and just a general lack of understanding on the school's behalf about Asperger's. We have known since he was a year old that there was something different with him and he was diagnosed about 4-5 years ago. My sister and her husband have had to endure criticism and speculation for years about their parenting abilities because of my nephew's meltdowns.

    Your blog is a great outlet for parents and family dealing with ASD and how to better understand their loved ones.

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  22. This is just wonderful......what a beautiful opportunity......thinking outside of the box....what a great teacher...and what a great mom you are....ps....i love the names of the kids on your blog....just awesome!!

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  23. This is AWESOME!!!!!!!!!!! But this did not just "fall in your lap." You MADE it happen with your rock-star mama skills.

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  24. WOOHOO!! So stoked for you!! and Little Dude, naturally! As someone else said "may he grow to love his preschool" (or words like that)

    On a side note - my fraternal twins are starting school in 2 days time and they aren't *totally* toilet trained yet. One is neurotypical, his brother has Developmental Delay with a side of Severe Speech Delay (altho, I question it a bit, coz physically he well keeps up with his brother!) Anyways, the neurotypical kid has been out of night nappies for months, and his bed is dry 99% of the time, but somehow he CAN NOT for the life of him stay dry during the day. We started toilet training at about 3years old, and this ain't my first rodeo, they have 3 older siblings, so we've tried all sorts of things to help them become fully 'trained'. I reckon it's laziness on their behalf, coz they know they have dry pants they can change into when they have an "accident" and wet themselves. (thankfully the pooping accidents have stopped! *sheesh*)
    So I'm packing them off to school with a few changes of clothes, a goodbye kiss and a good luck thumbs up for their teacher!! I warned them, they reckon the kids are ready to start..... :OD

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  25. You have just proven my conviction that when a parent of a child with special needs is willing to work with their child's teachers in positive ways, the teachers will bend over backwards to help you. In our pre-school, we have had children with hearing and visual disabilities, spina bifida, neurological disorders (seizure related) and severe food allergies. 99% of those parents were happy to help/educate in any way we saw fit. Only 1 posed a problem because she wanted everything her way (never mind that we elliminated any food her child couldn't have - she wanted us to only have food the child liked as well...wtf?)

    Good for you and Little Dude. I hope this is only the beginning of a wonderful school experience for you all.

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  26. My 5 year old attends preschool in a high school and enjoys it. My 3 (almost 4) year old with autism attends the most amazing public school preschool with teachers who I think deserve global recognition for their amazingness. Not to mention his bus driver and aide who have him LOVING to ride the bus. Because I have 2 in two different preschools and drop off and pick up are hectic. I am beyond thankful to have such great resources and have joined our county's SEAC to try and spread some positive messages about our school system. Thanks for making me laugh every day!

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  27. Honestly, you never know about the interacting... he may surprise you. Glad you have this great opportunity.

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  28. My 4.5 yo also does the preschool in HS and I'm really glad to hear we're not alone. We have friends the next city over who all go private or catholic because the public schools are shutting down one by one. Ours here is fine, so when I told them all where she went to Pre-k they looked at me like I was CRAZAY!

    Good luck and GO YOU!

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  29. How wonderful that you have a teacher eager to learn! We just had our daughters IEP (she has ADHD & Dyslexia) and the special education teacher said, "I don't know much about Dyslexia". I wanted to say, REALLY, where have you been living, THE MOON? How in the world are you in the education field and you don't know much about dyslexia!!!!!

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  30. I have an IEP kid. I can just say, sometimes you come across those teachers out there that are so eager to learn and expand. The teachers that realize they will be teaching children with different needs. Those teachers are so smart. They are the front runners. Eager to learn about different children and different teaching styles so they can become successful at their chosen career. In the end they are the people that raise to the top, the cream of the crop.

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  31. What a great opportunity! I won't lie; I cried a little. As for the jacket, the lying it down trick is insane. My almost-second-grade niece is STILL doing this b/c this is how someone told her to put on a coat. Imagine a snowy parking lot (b/c of course we can't wear our coat in the car...) I suggest whatever you do, don't linger on that method. Maybe your high school teacher buddy will have a good idea - a new coat perspective.

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  32. What a great opportunity for everyone!! My son had some struggles in preschool and it was a very difficult time. They tried to meet his needs but just couldn't get past some of his behaviors. As far as the coat goes...whatever technique you use just take it one step at time and then slowly let him do each step by himself until he masters it...then move on to the next. Start with just taking it off the hook or hanger. Little successes...one moment at a time!

    Keep us posted on your experience.

    http://nobarriertohealthyliving.blogspot.com/

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  33. That's wonderful, for both of you and all of the other kids in the class. And Jodi has a good idea on the method. That is how we taught my son to tie his shoes and button his pants. Though he still has trouble with shirts (too many buttons). I wish I could have done this for my son.

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