Monday, February 28, 2011

Fidgets, Speed, and Other ADHD Treatments

One of the most amazing things since the Pork Lo Maniac’s ADHD diagnosis is her own self-awareness of her behaviors. She feels the difference when she’s on her meds. On Sundays I usually give her the choice of taking it or not; she almost always chooses to take it. The new medication that she’s on doesn’t disrupt her appetite quite as much, and she isn’t getting headaches.

The only weird thing about her new medication is that the generic form of Adderall is amphetamine. So in my kitchen cabinet, on a top shelf, I have a bottle that says “Amphetamine, extended release.” Because who doesn’t want their speed to be extended release?

Yeah. I give my kid speed every morning. We sprinkle it onto a spoonful of yogurt. I’m *exactly* like Mary Poppins.

We called her Focalin yogurt “Fogurt.” I’d like to call this one “Speed, Yo” but probably I shouldn’t encourage my daughter to call it speed. Normally I teach my kids the actual name of what they take, but having her say that she’s taking amphetamines seems a little … off. In this case I’m just telling her it’s Adderall.

The Pork Lo Maniac has also become much more aware that she is better able to focus when she has something to fidget with. When there are no fidget toys available, she chews on her hair (which is slightly more socially acceptable than chewing on her shirt cuffs, which is what she used to do). We now have a supply of pencil grips, bendy erasers, Silly Putty, and small stretchy lizards for her to fiddle with when she’s doing homework. The pencil grips are ideal in school because they’re small and (hopefully) not a distraction to other students the way Silly Putty or a stretchy lizard can be.

We have also realized that having a fidget toy helps her to relax enough to fall asleep. The problem here is that you don’t want to fall asleep playing with Silly Putty, because that can necessitate an early-morning hair cut. Erasers and tiny lizards get lost amongst the sheets. (Not surprisingly, she’s an “active” sleeper, and the sheets and blankets end up twisted and jammed.)

The solution turned out to be a ribbon- and button-trimmed taggie or lovey. She normally likes “squishy” fidgets but was surprised and delighted to find out that she likes ribbon fidgets, too.

Etsy artist Pitter Patter Stitches was kind enough to make a custom taggie for the Pork Lo Maniac, and it is amazing. First of all, it’s totally not a “baby” thing. It was custom-made for the Pork Lo Maniac, so it is exactly perfect for an almost-ten-year-old girl who adores all things Asian. It is super-soft red fleece with (insert chorus of angels) the Chinese symbol for “go to sleep” on it in black.

It’s big enough that it’s not going to get lost in her sheets, but small enough that it’s totally portable. It’s also way cool enough to be out when her friends are over. In fact, The Pork Lo Maniac asked me to tell you about her taggie because of the awesomeness. And because it really helped her fall asleep.

And believe me, when the speed wears off? You do need that sleep.

29 comments:

  1. Wednesday is the day that I take my daughter back to her pediatrician to finish up her ADHD evaluation. Both her biological father and myself have been diagnosed, so I'm not going to be terribly surprised if the diagnosis comes back as a big ol' Yes.
    Any input you might have to offer would be awesome (other than what you already blog about, obviously). While I want DD to be able to get all synapses firing in order, my greatest fear is that whatever meds are prescribed are going to have an effect on her fun and quirky personality.
    In the meantime, I'll just keep reminding myself to breathe.

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  2. Melissa - it hasn't changed her personality at all! In many ways, it's just made the world less stressful for her and reduced her anxiety (about forgetting things, etc.). We get through homework without the frustration and tears, and then she has more time to play. Best wishes! You can also email me at Mommy@starkravingmadmommy.com if you have specific questions.

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  3. I thought chewing on shirt cuffs was something unique to my kid (who had ADD). Good to know she's not a total freak of nature, or at least not alone. We have had trouble with headaches on every medications we have tried, including focalin. It is very frustrating!

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  4. I'm so glad to hear you say that, SRMM. My son is five, and he's going for his diagnosis this Thursday. I have ADD (no H), and my Dad does as well, but my son clearly has the H. I have been concerned about putting him on meds, because he's so funny and affectionate and silly, and I love that, and don't want that to change. I do, however, want him to not panic when he's in a busy place, and be able to sit still enough to attend school (we're homeschooling right now) someday.

    Reading this blog makes me feel so much better as a mother. Just want you to know that.

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  5. I love reading your blog!

    As a pharmacist, though, I feel obliged to comment. The generic form of Adderall contains the same ingredients as the brand name Adderall - the brand name is also amphetamine salts, extended release, but the drug companies put a prettier name on it. The generic form of any drug is just labeled with the chemical name rather than a fancy pretty-sounding name.

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  6. Another alternative to chewing on clothing is this necklace http://www.chewelry.ca/shop.html?gclid=CJyzn-T6qqcCFUlN4AodBSDGDQ. My 7 yr old Aspie/ADHD son was chewing on buttons, neckline of his shirt, anything he could put in his mouth; this necklace did the trick for him. Like medicine, routines, rewards....it's all trial and error until we find something that works. For the moment.

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  7. Hmmm...sounds like how I use coffee and knitting/crochet/embroidery. Get that girl crafting! Won't work for active homework, but passive stuff like reading/listening it may help.

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  8. Would love to see a picture of the taggie.I think my son could use one. Does she take custom orders?

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  9. Dittoing Cate's request for a picture & custom order info~~ would they be suitable for a jr. high child?

    (Also--any other moms reading this who have fidget suggestions for 7th graders--I need them! She loses her pencil grips, shreds the squishies, and the school doesn't allow "toys," even after explanation of their purpose.)

    Thank you!

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  10. Oh, wow, I am glad that she is proud of her taggie....I made a taggie for my son when he was one and he absolutely adores it and he is 2 and a half, (probably will be a long time before he gives it up)....my older son who is 6 would probably like one too but I thought that would be ridiculous to give a 6 year old a taggie. At bed he always needs me to snuggle him and to be with him and maybe a taggie would help him. Thanks for letting me know it really isn't ridiculous if it helps soothe and calm my child! He is a very oral child also, chewing fingernails, skin around his nails (until he makes himself bleed) has chewed his shirt as well....not sure what to do for him in this area. I bought him a bracelet (rubber type like an armstrong band) but it hasn't helped much....I am afraid he will get an infection if he can't stop soon. Any suggestions on what else to do would be great!

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  11. YES! Pitter Patter Stitches makes custom taggies, so they can be "cool" for any age or special interest! Click on their link in the post to contact them!

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  12. Re: the chewing -- do a google search for "chewelry" or see the link in the comment above from AdventureTwin.

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  13. And I'll try to post a pic of the taggie later today!

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  14. Doodling can also help ADD folks focus. I doodle constantly in meetings. Little drawings, tracing letters on printed agendas, writing the alphabet over and over, it all works. Very quiet, socially acceptable, and helpful.

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  15. PIC, por favor, of fidget fleece coolness !!! And I just friended a page of FB that makes chew ring necklaces for Mom to wear for baby, but it's just a cool brightly colored circle that a teen or anyone could Totally wear...

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  16. Julabug. Teething bling.

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  17. Well, I'm a fan of this post! :) I'm so glad her taggie is helping her sleep!

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  18. Lots of chewies out there look like glorified passies, not cool for the older kid. This is awesome because it just looks like regular jewelry:

    http://www.amazon.com/Chewable-Necklace-and-Bracelet-Green/dp/B001G2LAJG/ref=pd_sbs_hpc_6

    And that bedtime taggie/fidget is awesome!

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  19. I am so glad that in America Aspie kids get their meds - we live in Sweden, and my Aspie daughter also has gluten and lactose intolerance as well as IBS (Irritable Bowel Syndrome) and her dietitian at the hospital where she goes for check-ups for her low weight (due to IBS - she can almost not eat anything...), the dietitian said mild meds against depression actually help against the pain with IBS, and told us to go to her regular doctor to get those meds. Well, we did, but the regular doctor said NO, that anti-depression meds are only for depression-ones, not for IBS. Now the dietitian did not make this info up, she works closely with the head of the unit at the hospital. So, I will change doctors, obviously, but it is such a pain to get adequate meds in Sweden that it almost makes me puke... So lucky you guys living in America!

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  20. I'd love to find something to help calm my son's fidgeting. Especially for school.

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  21. Our son took Concerta (another amphetamine drug) when he was younger. And the chewing! He ruined shirt cuffs, the necks of his t-shirts, you name it. Finally one teacher said she would allow us to purchase sugar-free gum that would stay in her desk & she would give him a piece during homework time. Now he is 16 & has taken Stratera for 3 yrs. The doc suggested taking him off the "speed" meds because it can really mess with puberty in boys. He also takes the generic form of Paxil for anxiety.

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  22. Totally cool! I took a look and not only is this crafter awesome for what she makes, but she is from Tulsa!! I grew up there.

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  23. solsticemom - I'm the pitterpatter lady, but I will say I am also a fourth grade teacher! I find that small bean bags or rice bags help my ADHD students a lot in class. They can hold him discreetly in their hands and as long as they don't become projectiles, they almost always help an ADD or ADHD kiddo concentrate. You might suggest this to your kid's teacher. I can make those for you too! (*wink, wink*)

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  24. I just found your blog and I love it! :) I am your newest follower! :)

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  25. You might want to look into an iron supplement for the "active" sleep. We added iron to my sons meds and he moves so much less now. Just make sure not to take it with milk as it will bind with the proteins and just wash out of the body.

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  26. That reminds me that I might want to make an appointment with my doc for a refill for my amphetamineXL. Medical school will be much easier when I'm not distracted by the...oh look! Shiny things!

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  27. This post just made me realize why my 12 year old ADHD daughter (and I, for that matter) are always chewing on something. For her, it is usually her nails or the string on her sweatshirt. I wonder what kind of chewie or taggie I could get/make for her.. hmmmmm.... Thanks for making it more clear why she is doing this ALL the time. I'll also try to stop nagging her to stop now that I realize it is a self soothing method.

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  28. I'm 41 years old and didn't get "officially" diagnosed with ADD until I was 25. We always suspected it though. I've been on Ritalin ever since. It really has made a difference for me. Do I think there are people on meds who don't need it, yes. Do I think kids that need it don't get it - yes. Do I think there is the whole gammit of good and bad, good and abuse, need and not need, absolutely. But for those of us who it truly will help - it is life altering! My life would have been totally different had I been diagnosed younger and had medication. I definitely would not have done the ADD College crash & burn. I applaud you for doing what your child and you need. You are giving her the ability to succeed and embrace the positives of ADHD instead of just fighting its negatives and getting nothing but frustrated and it eating away at her self-esteem. Bravo SRM Mommy Bravo!!!!!

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  29. My ADD son is a gum chewer. I'm not sure what's going to happen when he gets braces next year. Thank you for all the other fidget suggestions! :-)

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