The thing is (see, there's those things again), it's not so much a case of "the squeaky wheel gets the grease," as it is a matter of triage. Just like Hawkeye and Trapper on M*A*S*H, I have to decide which problem of which kid is the most urgent. Also like on M*A*S*H, my triage process involves a lot of wisecracking while stepping over bodily fluids.
For most of the summer, Little Dude's new Asperger diagnosis was topping the priority list, followed immediately by the Peanut Butter Kid's health issues.
Now that Little Dude is kicking and screaming his way into preschool each morning, and all I can do is wait for the Peanut Butter Kid's next GI appointment, I'm focused on making sure the PBK actually learns something this year. So far I am basically winging it while I wait for her homebound schooling services to start. I have some experience with homeschooling; we used two online charter schools last year during our move. The online charter schools provide a curriculum, teachers, and materials, though. It's professionally developed. By real educators with credentials and experience and lots of extra letters after their names. I, on the other hand, have a workbook and a list of skills I found on the Texas Education Agency website.
Incidentally, the homebound schooling thing presents a little problem for me: every morning while we get ready for school, Little Dude rants about how he said he wants to be homeschooled. Remember, Mommy? And he knows perfectly well what homeschooling is, and I have the Peanut Butter Kid home with me. So he must be thinking, what the hell? Why can't I stay home?
Anyway, I have a meeting with the school counselor tomorrow, which hopefully will involve being given a date and time when a tutor is going to show up at my house. Hopefully it does not involve the school bringing in Child Protective Services, because I'm starting to pick up a vibe that they think I have Munchausen by Proxy Syndrome. Which is particularly hilarious, given that they don't even know that I'm about to ask for a 504 Plan* to accommodate the Pork Lo Maniac's fine motor skill delay.
The PLM's hands had kind of slipped down on the triage list. But then today it took her an hour to get two-thirds done with her math homework (rote copying of multiplication tables). At that point I told her she could stop and move onto spelling. Forty minutes later, she had finished her spelling assignment (rote copying of spelling words). At the end of this lovely afternoon, her hands were fatigued and cramped, and she was near tears. Up the priority ladder she goes.
The Pork Lo Maniac has had years of occupational therapy. Her pencil grasp is so bizarre, I can't even physically duplicate it. At this point, the occupational therapists have given up trying to change it, and instead have termed it an "adaptive" grasp. I think that's the medical term for "wow, your kid's hands are whacked." In the last few years, we've been blessed with teachers that accommodated the PLM's situation "on the down low." This year, the PLM is in fourth grade. The fourth grade standardized test in Texas involves a written section. Houston, we have a problem.
I doubt my request for a 504 Plan is going to be met with streamers and balloons. The principal is really sick of me. Yesterday I walked Little Dude to the cafeteria, where his class waits for their teacher. It turns out that me entering the cafeteria must be some sort of breach of national security or something, because apparently I need to carry my screaming, kicking child into the main office first, show my ID (which they have on file anyway), and obtain a hall pass.
You know what's generally not a security risk? Carrying a screaming child into a school. I could see them becoming alarmed if I was carrying a screaming child out of the school, but that was clearly not the case yesterday.
So fine. Whatever. I will carry my flailing son, screaming and crying, into the office and obtain a pass. Except this morning an aide was waiting for me in the lobby running interference. She took him, so that I "didn't need" to take him to the cafeteria myself.
And yet I still got a telephone spanking from the principal today for walking my kids into school instead of using the drive-up line. The Fine. Whatever. I will walk Little Dude into the lobby. My nine-year-olds will enter through the side door, like servants or orphans in Oliver Twist.
And I'm still asking for the 504.
.......................................
*For the uninitiated, a 504 Plan allows for accommodations in the educational setting; e.g., a child with a hearing disability might need to sit closer to the front of the room. Legally, it is Section 504 of the Rehabilitation Act and Americans with Disabilities Act (ADA), and is intended to prevent discrimination against people with disabilities. The IEP, which falls under the Individuals with Disabilities Education Act (IDEA), allows for specialized instruction. In this case, I'll be asking for a 504 Plan to accommodate the Pork Lo Maniac's fine motor skill delay; she may need extra time on essay tests, for example. For more about IEPs and 504 Plans, see the WrightsLaw website. Now you know everything I know. Don't you feel hip and awesome?


Oh SRMM, I don't know how you've held your tongue this week. I would've probably killed MP Pricipal. You can request that PLM work be done on a computer. I had quite a few on 504's that did that. It is a very reasonable accomodation.
ReplyDelete@Anonymous - For the most part, I'm trying to keep things collaborative and civil, because that's what's best for my kids. I didn't even want to write about it on my blog because *what if* she gets wind of it, somehow? Fortunately, because I only have one friend here, there aren't too many people here that know I write this blog. Also, I decided that it was better to vent it here than to snap and vent it right at the principal!
ReplyDeleteThis post was perfect timing for me, about to ask for a 504 plan on one and an IEP on the other. It is not a fun process, but I do have an advocate to help. Is there one in your area?
ReplyDeleteHave you ever heard of Social Stories? They are an amazing techique for with ASD kids. It's like a step by step story for how to go to school, what to do when you go out to eat, etc. It has been a HUGE help at our house with all the transitional tantrums. It helps my little dude not scream (so much).
ReplyDeleteAs a former special education teacher, and now a Work At Home Mom (aren't all SAHM's this?), I wish I lived closer to you to be your parent advocate. What you are requesting sounds very reasonable. I'm sure you know this, but you could also request modified homework (ie. less math problems to solve, practice spelling words orally). Stick with it!
ReplyDeleteI really hate schools. Institutions. Whatever you want to call them. If homeschooling offered an income, I'd be all over it. Better yet, still trying to figure out how we can join a Bush tribe in the Kalahari and our biggest issue of the day would be avoiding hyenas while we dig for roots.
ReplyDeleteAh Raving Mommie! I've got two guys with autism myself, severe anxiety, allergy issues, though THANK GOD not bad enough to require an epi-pen. Thing One (Seussical reference, not a completely inappropriate one) did end up spending a week in the ER after a collapsed lung from a cat allergy and asthma flare up!
ReplyDeleteAnyway, I'm with ya sister.
That principal sounds like a jerk. I walk my little guy to his classroom door (he's a kicker/screamer, etc) mainly because he's been traumatized by three person holds they've done on him in school
I DREAD school starting because it's always a nightmare!!
Good luck to ya and I'll follow you on twitter.
There I'm Jeni_Decker
Here's my website:
http://closetspacemusings.blogspot.com/2010/04/son-of.html
I belong to a great on line community for people with food allgergies...many on there have kids with other "things" ;) going on as well...they are WELL-versed in 504s, IEP, etc....it never hurts to have a lot of knowledge and "language" on your side...come visit us (particuarly the school threads...)at http://allergy.hyperboards.com/index.php?action=home
ReplyDeleteI love your blog, as a woman/mommy/OT! I share it with everyone! I wish I lived near! I haven't met a hand I couldn't help and I would gladly supply the IEP cocktails! How do you feel about Canada?!! Sigh... Well thanks for your posts. You are pretty awesome.
ReplyDeleteI love the Olly North pic. As crazy Marines go, he's one of my favorite loose cannons. I would absolutely LURVE to see him, and Senator Webb, get back into the boxing ring for a rematch. I mean, Yay, geezer fight!
ReplyDelete(They had a famous boxing match back when they were both midshipmen, which Jim Webb Mary Sued into one of his war novels.)
Oh, SRMM, I feel for you. I am so sorry you are being told not to walk him in and all that mess. Sheesh. And I totally think you should ask for a 504 for PLM. She could have reduced homework assignments (write her spelling words once or twice instead of ten times or whatever) or use a computer, or whatever. You HAVE to be your children's advocate! No one else will be! DO NOT LET UP until your kids are taken care of. I am a special ed teacher and I love parents who fight for their kids. I know too many who just sit back and say "whatever...you know best." No, I don't! Fight for your kid. Best of luck. Keep us all posted on how things go!
ReplyDeleteWow. I have noticed how crazy tight schools are, but then again - I live near the school where Kyron Horman was taken.
ReplyDeleteGirl Child is getting a 504 for the hearing/preferential seating thing that you mentioned.
I would be most interested in seeing PLM's adaptive grip - it sounds very similar to Girl Child's. I'm trying to get her to write THREE thank you notes and it's painful. FOR ME. And then subsequently, for her. It's been described as a "low tone grip." Hmm....
If you don't fight for your kids, no one will. I have a child on an IEP and they will make accommodations for the standardized testing. I have always had caring and helpful support from our SPED department and I am so sorry you are having such a tough time. It's hard enough to fear on every level for your child, but to also have to think the people helping them aren't looking out for their best interests is incredibly frustrating. You will overcome this. What an amazing job you are doing for your children and how wonderful it is they have you for a mom. Never forget that.
ReplyDeleteHave you had a dysgraphia eval for Pork Lo Maniac? I think it falls under dyslexia and other.
ReplyDeleteOh, I thought schools were prison-like back in the fifties and sixties, but they were Liberty Hall compared to what we have these days. My elementary school had none of those fences or gates, or cops.
ReplyDeleteThese crayon rocks are great for learning hand griping and motor skills. That and they are really cool!
ReplyDeletehttp://www.crayonrocks.net/index.html
I'm blown away by how much you have educated yourself about the process of getting help for your little ones. That's more than half the battle right there. I'm so impressed with your advocacy for your kids which bodes well for their future. They may never say so, but thank you SRMM for taking such good care of them.
ReplyDeletephysicsmom