Friday, July 30, 2010

Head-Banging: The Asperger Syndrome - Bon Jovi Connection

Little Dude is a head-banger.  This is more of an Asperger Syndrome thing than a heavy metal thing, but he does sometimes look like a tiny little Bon Jovi fan circa 1984.  Sometimes his Asperger isn't too noticeable, but when he starts whacking himself in the head repeatedly with a toy lightsaber, it's a little more apparent.

As disturbing as the head-banging is, it's just yet another thing that completely freaks parents out but doesn't faze doctors in the slightest.  Personally, I don't find being hit in the head soothing at all, but to Little Dude it's as good as a trip to the spa, apparently.  I think this vacation is starting to wear us both down. Right now he's smacking himself with a paper towel tube and I'm wishing he would go to sleep so I could have a bowl of ice cream in peace. I guess everyone has their own coping mechanisms.

Little Dude's self-soothing is worrisome not just because it seems, well, weird, but because it also seems like he is very slowly giving himself a concussion.  So far (knock wood), he hasn't given himself one.  At least not with the head-banging.  Once he slipped getting into our minivan, and fell against the open door.  The arm of his eyeglasses caught on something and the back of his ear was sliced open.  We were just leaving the Center for Scientific Study of Mommy Skin, which is close to our pediatrician's office.  I basically threw Little Dude and the Peanut Butter Kid into the van, buckled them in, and flew to the doctor's.  After cleaning up the wound a bit, the doctor sent us down to the Children's Hospital of Philadelphia.

(I need to take a moment here and just say flat out that my love for both this pediatrician and the Children's Hospital of Philadelphia [CHOP] knows no bounds.  I would mention the pediatrician by name but he is up to his eyeballs in patients and turning people away makes him sad.)

We moved through the Emergency Room pretty quickly, because Dr. McAwesome had called ahead for us, plus, you know, Little Dude's ear was kind of hanging off his head.  At one point a research assistant came in and asked if I would be willing to participate in a survey about head trauma and why we chose to come to CHOP.  I explained that unless my child needed treatment right this second, I prefer to drive the extra ten minutes to go to CHOP, the nation's best children's hospital, as opposed to Local Yokel County Hospital.  I'm sure Local Yokel is fine and all, but really, why choose fine when you can have best?  That's like saying, gee, Ruth's Chris Steakhouse is ten minutes away, but I'm too lazy to drive to its deliciousness.  I'll just have this Steak-Umm because my freezer is closer.

Little Dude's ear was glued back together, appointments were made for follow-ups, and we went home on our merry way to pass out relax after all that stress.

Two weeks later, the Peanut Butter Kid was spazzing out at bedtime and managed to roll off the bed and smack her head on the corner of the dresser.  I wasn't in the room, but I heard the tell-tale giggle, giggle, giggle, THUMP ... pause ... blood-curdling scream.  I ran in, grabbed a t-shirt and applied pressure.  Once the situation was somewhat under control, I gently removed the t-shirt and asked the Absent-Minded Professor to take a look.  (I was holding her and couldn't see the back of her head.)

"How bad is it?" I asked him.  "CHOP or Local Yokel?"

"It doesn't look too bad.  I think Local Yokel is okay."

I rolled my eyes, which is something I really try not to do, especially to the man who loves me and is hopefully willing to put up with my nonsense for the rest of our lives.

"Unless she's hemorrhaging blood and needs a transfusion right now, I'm taking her to CHOP."

She didn't seem to need a transfusion, so I packed her into the van and headed down to CHOP.  The guy from Office Space nice doctor stapled her head back together.  (Oh, yes.  Stapled.  Like she was a budget report.)  While we were hanging out being "observed" to make sure there was no concussion, the same research associate came in.

He got about three sentences into his spiel when I stopped him.

"Yeah, um, so I was here two weeks ago?  With my son?  Who also had a head trauma?  And I swear this doesn't happen to us on a regular basis, normally.  So if you promise you won't call Child Protective Services, I will be happy to participate in your survey."

The thing is, whenever you see those reports on the news that a family's hovel home has been raided by CPS, the officer in charge always ends his statement with, "and the place was filthy."  It's a safe bet that my house was a total disaster at that particular moment, because it's pretty much always a mess.  I mean, it's not like there's animal feces lying around, which is good, because that's another thing the CPS officers tend to mention: "the place was knee-deep in dog feces" or whatever.  Sometimes I find a stray toddler poop, but we try to keep the poop situation under control.  And we don't have a dog, so thank God for that. 

But still, the house tends to be a mess.  And I do worry that some day there will be a story about me on the evening news, and the CPS officer will be there saying "I found naked children chewing on wood."  He'll shake his head sadly, and then note, "and the place was filthy."


You know how your grandmother always said you should wear clean underwear in case you're ever in a car accident?  Sometimes I clean my house in case we're raided by Child Protective Services.  That way, the naked children chewing on wood, boy hitting himself with a lightsaber, and coffee-guzzling mom will just seem charming and quirky, not neglected and deranged.

22 comments:

  1. I love you! I will never forget my Aspy headbanging on tile and laughing, not cool!

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  2. I pick hospitals for the same reason. since they are about the same distance away from us, I always pick the nicer hospital. They have better painkillers. The only problem is that our super great pediatrician doesn't have rights at the good hospital. But it's the better hospital so there doctors are competent. right?
    I love my kids doctor. one of the first things he told me was that the skull is the strongest bone in the body. A few bumps (whacks?) to the head isn't going to do any damage. No to the kid anyway. The most fabulous words ever spoken to a neurotic first time mom.
    After 3 kids, I'm a lot more relaxed.
    Now if you'll excuse me, I'm going to scour my house. I'll see you some time next week if CPS doesn't show up.

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  3. Love it. First, because it is always nice to see a smiling Jon Bon Jovi in all his glory first thing in the morning. Second, because I too had a headbanger who was actually more of a bodybanger. Instead of just banging his head he'd run his whole body in to the wall repeatedly and laugh the whole time. Fortunately now that he is older we've found more appropriate ways to get sensory input. (He really likes to sit with both his feet BEHIND his head. Still strange but people think its cool instead of really, really weird.) He is also starting to love 80's metal so he can bang his head the way it was meant to be done and no one thinks a thing of it.

    P.S. I sometimes go into panic cleaning mode also because I'm afraid I'll get hurt and hospitalized and when people come by to help our family they'll wonder how we live like this. You have to live the chaos of multiple kids to truly understand it.

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  4. I do the same thing with the hospitals. The only time I had to rush like a maniac by myself with a screaming toddeler who didn't speak and was in so much pain running red-lights screetching into the emergency parking lot leaving my car running
    running full force with a writhing child and burst into the quiet local yokel e.r.in a high state of crazy was when my autistic son peter climbed up on a chair while my back was turned opened a cabinet above the stove where I kept all the sharp things like scissors and kitchen knives(he was after the scissors) and proceeded to grab for the scissors but instead they fell into a boiling pot of water and he just went ahead and stuck his hand into the boiling pot to retrieve the desired scissors.I have never heard a scream like that before or since. I won't even go into how the staff at the hospital thinks they know better then the mother how to get the child to cooperate...I TOLD them he needed to be sedated!!!!

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  5. con't from my previous post
    Oh,btw turning blue asthma attacks appendicitis and rocky mountain spotted fever goes to Schneiders Children's Hospital..One of the best on the eastern seaboard

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  6. I remember the day the new neighbors moved in next door - the bathroom window was open and my oldest was in trying not to fill a bottle with pee for a bladder infection test - why do they do that? The kids is screaming about it hurting... there HAS to be a better way to test for that?!?!?

    Anyhoo she's screaming about pain and "why are you hurting me!??!" and I'm begging for her to "just pee for crying out loud" On my way thru the kitchen I saw the mess in the kitchen and playroom and just knew TODAY would be the day CPS was called from our brand new neighbors due to the screaming coming out the window.

    It's like the underwear thing with 1 caveat - your underwear MAY be clean on the start of the drive but have a bad enough accident and there just isn't any way possible it'll stay that way... The one day you don't clean the house will be the one day they show up.

    M

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  7. Dogs are good at keeping poop under control...they just EAT it (yuk).

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  8. My oldest used to SLAM his head into any hard surface when he would get emotionally upset. I seriously mean ANY hard surface, the tile floor, cement sidewalk, the side of my car, etc. I had to settle for growing his hair shaggy enough to cover the bruises that lined his forehead. Thankfully he never gave himself a concussion. Maybe I should have taken a head trauma survey.

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  9. Thank you for the great laugh to start the day-- just found your blog last week and it has become my new addiction. Love your sense of humor and how you share the things the rest of us are thinking at the same time. Please keep the posts coming! : )

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  10. I think I post every day now that I've become addicted to your blog but seriously... you could be spying on me and describing my life (with one less child). I'm sleep deprived so I was especially entertained this morning!

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  11. As always, the perfect way to start the morning! I can totally relate - our little man started life with serious head trauma, has had two surgeries and we actually have had CPS come into our life. Thankfully Phoenix has two amazing children's hospitals now, because I'll never set foot back in PCH since they accused his birth trauma on me and my husband. Thanks for the laughs every morning!

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  12. My son hasn't been diagnosed, but does a lot of the same quirks as Little Dude! We pretty much have to follow him around 24/7 to avoid some sort of trauma to himself, his brother, or his baby sister. AGH! This morning he wanted my attention (as did the other 2 children & the nanny all at the same time), but he doesn't get the whole "just a min" part so he pushed me & I was in heels so I flew back & fell over the toy box! Seriously, you're 2, how are you that strong?! We do have some sensory toys, but he just bites them until they're destroyed. Ugh. I just love to see the funny side in it all... I think some of the same things you write so it makes me feel good that I'm not alone. :)

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  13. I love starting my morning off with a cup of coffee and reading your blog!The kids play upstairs(nicely only for about 30min...and that time is almost up cause I can hear the sounds of screaming)and I get a free minute!My 3 year old daughter has recently starting screaming out loud(and I know my neighbors can hear her)"your gonna break my arm!!!!" as I lead her to her time out spot. She also screamed ever so loud in walmart "my pee pee burns!!!" Is it wrong that I wanted to scream back "well if youd actually wipe right we wouldnt have this problem?!!"???

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  14. Having mothered/stepmothered 6 kids including twins, I thoroughly enjoy reading your blog because I can hear over all your comments the love with which your comments are made. The secret to successful parenting is keeping your sense of humor and perspective.
    Our kids are all launched successfully IN SPITE OF my parenting -- one is doing humanitarian work in Haiti, another just donated a kidney to a stranger, the rest are independent and loving and compassionate. If you had known them as young children (head-banging, obsessive, bullying, rebellious, willful, bed-wetting, the list goes on) you would never have believed they would turn out so well.
    Keep on helping moms see the humor in everything -- this too shall pass.
    Gramma R

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  15. i am always in fear that someone is going to call CPS on me! i just let my ASD child walk out of a children's hospital without shoes, b/c he had just patiently waited for 2 hours for his first neurology appt, then another 30 min for a 12-vial blood draw and he was DONE. sigh. hoping no one followed me home!

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  16. My Aspy/SPD son has a bump/bald spot from banging the back of his head against the wall. Every medical professional, teacher, parent, and stranger we see feels the need to mention it. My favorite was the preschool sub who called me to pick him up b/c she thought it was ringworm. She looked even more digusted at the real explanation. Everyone has their tics and "sensory" problems, whether they have a neurological disorder or not. Some kids are thumb suckers or nail biters, some are head bangers. We deal and we wait for them to outgrow it.

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  17. My eldest now NLD, had a perma bruise/callus on his forehead. IMO, that was NOT acceptable, EVER. I'm sorry... anyone who thinks it's "ok" for someone to slam their head into walls and punch holes in them... really needs to think about the damage to their child's brain. It can, in the long term, kill you or make you go blind.

    So, we decided that out of all the behavioural issues we had... that one was going. About every 3 to 6 mths now - he's nearly 11 - we have to go back through the "war" - and stop it again. He loses all priveledges instantly... then of course it's instant meltdown... but we deal with it and after about a week, it stops once more.

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  18. LOL, you are too funny! My grandmother tells me that you should have your house and drawers organized so that if you where to die and people have to got through your stuff there wont be a huge mess, just think of the impression you will have left everyone with! I told her if I am dead I won't care if they find a huge mess, I just don't have the time or the motivation to be that organized LOL!

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  19. @farmwifetwo -- good info. So far Little Dude isn't doing anything that dramatic that I think he's going to get hurt. It's just disturbing to see. If it gets worse, I'll employ your strategies. Thanks!

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  20. First of all *huge hugs* ... you are awesome!!

    My Aspy is 10 now and we've gone thru some pretty fun (not) sensory releases with him. He has (thankfully) stopped the head-banging thing and has moved on to some other releases. But, I was reading this to my husband, and his comment was: "Yeah, I'm glad Red has grown out of banging his head ..... now WE'RE the ones that do it *sigh*"

    You're not in the pool alone, friend ...

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  21. Everyday (one of my boys has a daily injury) I thank God I was an EMT. I can glue, set, and check for head injuries. Even with insurence the 20% gets expensive. I also fear CPS (or I did for the first 2) because who hurts themselves that often. I've told them... I really think that if the cape didn't help you fly yesterday, then today isn't looking good either! It took my boys a while to figure that out and the girls only encourage them!

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  22. When my husband is late and I can't get in touch with him I instantly think CAR ACCIDENT. Then I clean the house so when the police come I am not ashamed of the mess. And of course if he were DEAD then a ton of people would come over and I would be too upset to clean, so better clean right then. And he wonders why I get mad if he doesn't call.

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