Now, I know they're handing out that diagnosis the way they hand out Little League trophies these days (everyone's a winner!), but it didn't come as a major surprise when the pediatrician brought it up. I'm pretty sure most four-year-old boys can't name every character in all six Star Wars movies plus The Clone Wars. Also, most four-year-olds haven't hit the maximum number of points (4 billion) in Lego Star Wars for the Wii. (I'm hoping his preschool will have an A/V club so he can make some little friends.)
The only outfit surprised by this diagnosis is our school district, which is going to have to provide all kinds of helpful services, and preschool, free of charge. The part that really surprised the school district was my ability to quote Texas Education Code, chapter and verse, to ensure that he gets those services. It turns out that being a thorn in the side of the school district is one of my most enjoyable and rewarding hobbies.
So. Aspergerish. Basically, this means that he doesn't have all of the Asperger's criteria, but he has enough weirdness that he will benefit from therapy. I am grateful for the diagnosis. Speech, Occupational, and Physical Therapy will really help. Little Dude is being given a “provisional” diagnosis, to be re-evaluated in three years. Qui Gon Jinn thinks that Little Dude’s symptoms (quirks) will be resolved, with the therapies, in that time.
Here's the thing: I don’t know that I really want the quirks to resolve. Some of them, yes. You know how sometimes you look at your child and think to yourself, "that boy ain't right"? It's okay, every parent thinks that sometimes. But that's pretty much an every-day, all-day thought around here. Some of Little Dude’s behaviors truly disrupt our family life, and I know that school will present a lot of challenges.
But most of his quirks? I guess I’m just one of those besotted mothers. I find most of them adorable. He does that autistic hand-flapping thing; we call it his “happy hands.” I like that jumping up and down repeatedly is his way of making a nonverbal exclamation point. I know his one-track Lego obsession is
I guess these things will become less cute over time, and I certainly don’t want him to be socially ostracized. We’ll go along with the “clap, not flap” therapy. But I really hope he doesn’t change too much. Little Dude is lacking the social filter that stops most people (although apparently not me) from saying the things they’re not supposed to say. I for one find it utterly hilarious, but I get that his teachers may not. For example, tonight Little Dude (who has a thing about shirt tags) was upset that The Absent-Minded Professor had a little horse logo on his shirt.
“You have to unsew it,” Little Dude insisted.
“Why?” asked the Absent-Minded Professor.
“Because it’s too dangerous,” Little Dude whispered, Sixth Sense serious. “People will think you’re stupid.”
People will think you're stupid.

Oh your post made me laugh!! And I love it, too. I know the feeling on so many of these things.
ReplyDeleteZoe doesn't flap all that much, but no one has ever recommended "clap,not flap" therapy. No one has ever suggested that we need to do all that much adjusting at all.
We shall see.
ginabad
www.mom-blog.com
Hey, thanks for checking my blog. I've been getting comments on Little Dude's "happy hands" for a long time. Again, it's cute now, but I'm sure it's just weird when a teenager does it.
ReplyDeleteI love the term "Asperger-ish". I have a son like that. I'm like that. And I have a daughter officially diagnosed with PDD-NOS, who is 18 now. We're all similar but different. I LOVE this blog and have shared it with some of my long-suffering FB friends and family.
ReplyDeleteThank you!
ReplyDeleteI just found your blog and I love it!
ReplyDeleteThanks Mommarazzi! I took a look at your blog -- your photos are gorgeous (and so is your family). I'll keep your little boy in my thoughts.
ReplyDeleteI know I'm coming into this late, but I'm catching up now. You just described my son (except for all the Star Wars stuff -- his was Spongebob. Of course, he hasn't actually watched Star Wars yet, so who knows...) I want to give a piece of advice from one SRMM to another -- DON'T do the 'clap not flap' thing. His therapist tried to get him to do it, but it never took. I am so thankful for that! Because now that he's 8, sitting in his classroom clapping would be FAR more disruptive than quietly flapping!!! By the way, he doesn't flap too much anymore. We have an indoor (exercise) trampoline and an outdoor netted one -- both lifesavers. My guy likes to combine jumping and running. When he was younger, running meant throwing himself into the couch, getting up running into the kitchen to throw himself into the fridge, and so on and on and on... Now he's satisfied with jumping on the trampoline, hopping off and running up the stairs, then back to the trampoline again. His stimming is always changing, and as crazy as it sounds, I miss the flapping. First, it was an obvious indicator that he was overwhelmed, and second, it was his 'thing'. Now that he's growing up, the flapping's gone and "Spongebob is for babies." Even Aspie/Autie kids grow up. I look forward to reading much more about your Little Dude. And remember, we're all a little "Aspergerish". You'll see...
ReplyDeleteTHANK YOU for the input on clap not flap.
ReplyDeleteI'm reading this late, too, but my "AS-ish" 3 1/2 year old has flapped like crazy since he could move his arms and I personally love it. His grammy tells him to stop sometimes but I can't bring myself to at this stage in the game. The happiest my kid can be? Flapping, rocking back and forth on his feet with a little hop-step in between while watching the trailer of a nature DVD about tigers over and over. (We limit him to 5 times in a sitting or he'd wear a hole in our rug.)
ReplyDeleteWish I had known about the 'clap not flap' before I freaked out at my little buddies flapping which he doesn't do anymore, instead he hits himself on the forehead.
ReplyDeleteOh gawd, naming things ... first words were dad, mum, percy ... he could name and recognise them all when he was two. Geez, I thought Percy and Henry were the same train - they're both green?? I don't want him to change either - I love the seven step goodbye kiss/hug process and hearing 'I love you' 100 times a day.
Just wondering, if the lego thing might lead to a career in architecture - where will an alien/ben 10 obsession take us?!
This post and your blog makes me ridiculously happy. Thank you.
ReplyDeleteOur son is PDD NOS and I read Age of Autism a lot and stay abreast of autism research, etc. But at the end of the day it is all very depressing. Most of those children are non verbal (sorry, my darn hyphen key is broken) and on the more severe end of the spectrum.
Our little one is verbal (thank you God), making progress and responding to the myriad of diet/supplement/therapy that we throw at him. He's getting better and that is good. Not as fast as we'd like ... but still. I'll take it.
So to discover your blog and how you love and celebrate your child and even rejoice a little in his weirdness is just so refreshing to me.
Not that other mommies don't adore their children as well, it is just written with a different tone. More anger, less joy.
Anyway. Thank you.
Don't worry. He's still your son, and those shrinks who try to "fix" him can suck it. That little "filter" tends to be more trouble than it's worth anyway, and as someone who doesn't have it, I'm GRATEFUL that I don't. It'll serve him well to be able to just call people out without fear, later on (even if it does get him the rep of being an annoying little shit as a kid).
ReplyDeleteThank you for putting a smile on my face. I am new to your site and I am enjoying you very much. I want to read ALL of your post....I can so relate to ALL you say. Thank you for putting it like it really is...no sugar coating...you really are the best. Signed, Jedi Mom! :)
ReplyDeleteAsperger-ish? If he didn't meet the criteria for Asperger's, then why didn't he/she just diagnosis him with PDD-NOS...like he's supposed to?
ReplyDeleteYour post put a big smile on my face! My son is a jumper when he's really happy or really frustrated...your description of it being a nonverbal exclamation point is dead on!
ReplyDeletePS..I think people who have brand labels sewn into their shirts are stupid too!
-TA
I could have written this, but I wouldn't have done nearly as well. I couldn't stop reading it out loud to my husband. You are just amazing!!!!! Our son, at age almost-6, is in the same place as Little Dude: just enough quirks that we don't qualify for any services, but those quirks make our lives just difficult *enough* that we're losing our minds. So glad to meet a kindred spirit! I fancy myself a writer, but clearly I have a long way to go! Thanks for the inspiration.
ReplyDeleteGreat post. For what it's worth, I don't think the whole Lego obsession is weird at all. I stumbled upon your post after a Google search for a Polo logo (my wife makes cakes and needed one.) so I don't have a child that is experiencing any of the things that yours is. I truly appreciate your perspective on everything. About the Lego thing, my 6-yr old, who isn't "As-ish", who is described by his teacher as her top student (in Kindergarten he's already reading at almost a 3rd grade level), is 110% obseessed with Lego's also. From a very early age he will take all of his sets, Star Wars, Indiana Jones, etc., and just create his own world. Funny thing is too, that everything is always symmetrical. So maybe the whole Lego thing isn't insane but actually a sign of extreme intelligence just waiting to be utilized?
ReplyDeleteBravo! Well described... I've worked in the field for over 20 years and I am by turns frustrated and astonished by the people I support. You are right... what's cute now isn't so much later on - but you seem to be the type of Mum that will know what "therapies" will work for Little Dude and your family over time.
ReplyDeletestark. raving. mad. mommy.
ReplyDeleteone of your first comments:
" I've been getting comments on Little Dude's "happy hands" for a long time. Again, it's cute now, but I'm sure it's just weird when a teenager does it."
i know a teen who does that still (my boyfriend), i myself find it rather cute still. :) so if it doesn't stop by the time they're teens, don't worry, there will be people who still think it is cute. :)
and i love your blog. :)
PDD-NOS, here. I love explaining that mouthful to people. I think I might adopt "Asperger's-ish." It's a whole lot easier than "It essentially means he's weird, but not really weird, and not weird enough to be weirder..."
ReplyDeleteAnywho. I just tripped over here from your Domestic Enemies post at RFML, which I loved, and am convinced we should photocopy and pass out to every soul on the planet.
All of that to say this. You've got a new blog follower. Don't mind if I get comfy, do you?
Not Supermom said...
ReplyDeletePDD-NOS, here. I love explaining that mouthful to people. I think I might adopt "Asperger's-ish." It's a whole lot easier than "It essentially means he's weird, but not really weird, and not weird enough to be weirder..."
Oh I totally know what you mean... my son is also PDD-NOS and virtually no one knows what it means. I love(most)of little man's quirks. It's a huge part of his personality and I wouldn't change him for the world :)
Honestly, no one is going to 'fix' little man's quirks. Just let them try and they will find one spacey kid on their hands. I've two on the spectrum, and anyone who tries to 'fix' their quirks are just ignored. If they are successful, they will quickly move onto something much, much more annoying and less socially acceptable. I've seen this with a friend, hand flapping stopped, genital rubbing started. Woot! These quirks are what soothes them, makes the world more acceptable. If you can find a better way to make the world acceptable, then they honestly, as they get older, will listen.
ReplyDeleteGood luck. I love my ducks, just like they are, just as they grow into the perfect humans as intended. I do miss the word, Psghetti, though.